Hi everyone,
Today I feel even better than yesterday! My counts are up and climbing and my fill in doctor (mine's out of town) said that if I were his patient that he would probably send me home this Thursday or Friday. This shocked both Deb and I because they recommend that you do a deep cleaning of your house before a bone marrow transplant patient comes home. Well, we hadn't planned on getting out for another 2 or 3 weeks, so Deb is home deep cleaning! She is going to have a carpet cleaning company come out and do the carpets and couches and we need some work on our AC unit so they are all coming tomorrow! The only trouble I'm having right now is diahhrea but they say that might be around for a while and are trying to control it. I have been sleeping better and feel more rested. I feel like I have a lot of energy so today I went out into the halls and walked (I've been restricted to my room for about 2 weeks). I walked for about 15 minutes and was very tired so I came back to my room and layed down again, man am I weak! I've tried not to think about how long I've been in this time and when will I get out cause when I do it can drive me up the wall, so enough about that! LOL! I appreciate all the thoughts and prayers that all of you are sending and a great big "HELLO" to 'Ernie's Angels', all of you at LAUSD, all my friends wherever you are (people are praying for me all over the U.S.!), and mostly my family who have really been there for me! God bless you all!
IN HIS HANDS,
Ernie
Tuesday, May 8, 2007
Monday, May 7, 2007
May 7 Day 12
Hi Everyone,
I woke up this morning feeling pretty good!!! Even yesterday I didn't feel that well, but my white counts came up to 1.3 and it must have been enough to give me the boost I feel. I have not felt good for about two weeks but about a week ago I started feeling really bad. My worst day was last Thursday, I didn't even want to roll over in bed!!! Wow, its nice to feel this way! The doctor that saw me today said that I would probably not get out of here for 10 to 14 days because they have to keep watching for the graft v.s. host disease. Deb finally had to shave my head today because my hair was falling out so bad and just for the heck of it we shaved it and left a mohawk!!! It only lasted long enough to get a few pics and then we shaved the rest of my head! It was kind of fun though!!! This is the first day that I've played my guitar and sang for awhile and that felt good too! I saw 3 therapists today, 1) occupational 2) physical 3) recreational. The physical therapist exercises my legs, occupational my upper body, and the recreational therapist is there to help me relax by playing games and stuff. I had a culture taken last Thursday that turned out positive, meaning something was growing in one of the tubes of my catheter. It still has to grow in their lab some more to see exactly what it was, but the doctor thinks the antibiotic they gave me that night took care of it. Thank you all so much for praying for me, I've really been blessed thru this and I know its God honoring your prayers! Keep up the great work!!!
IN HIS HANDS,
Ernie
I woke up this morning feeling pretty good!!! Even yesterday I didn't feel that well, but my white counts came up to 1.3 and it must have been enough to give me the boost I feel. I have not felt good for about two weeks but about a week ago I started feeling really bad. My worst day was last Thursday, I didn't even want to roll over in bed!!! Wow, its nice to feel this way! The doctor that saw me today said that I would probably not get out of here for 10 to 14 days because they have to keep watching for the graft v.s. host disease. Deb finally had to shave my head today because my hair was falling out so bad and just for the heck of it we shaved it and left a mohawk!!! It only lasted long enough to get a few pics and then we shaved the rest of my head! It was kind of fun though!!! This is the first day that I've played my guitar and sang for awhile and that felt good too! I saw 3 therapists today, 1) occupational 2) physical 3) recreational. The physical therapist exercises my legs, occupational my upper body, and the recreational therapist is there to help me relax by playing games and stuff. I had a culture taken last Thursday that turned out positive, meaning something was growing in one of the tubes of my catheter. It still has to grow in their lab some more to see exactly what it was, but the doctor thinks the antibiotic they gave me that night took care of it. Thank you all so much for praying for me, I've really been blessed thru this and I know its God honoring your prayers! Keep up the great work!!!
IN HIS HANDS,
Ernie
Saturday, May 5, 2007
May 5 Day 10
Hi All,
There's really not much to report today. Ernie is feeling about the same. His white count has gone up to .3 which is still considered to zero, but it has risen 2 days in a row now, so were hopeful it's the start of things getting back to normal. He has not had a fever again either, but he's still very weak. Hopefully he will feel up to writing the blog soon, I don't mind doing it for him but it would mean he is feeling better and getting his strength back. Keep Praying!!
God bless,
Ernie and Debby
There's really not much to report today. Ernie is feeling about the same. His white count has gone up to .3 which is still considered to zero, but it has risen 2 days in a row now, so were hopeful it's the start of things getting back to normal. He has not had a fever again either, but he's still very weak. Hopefully he will feel up to writing the blog soon, I don't mind doing it for him but it would mean he is feeling better and getting his strength back. Keep Praying!!
God bless,
Ernie and Debby
Friday, May 4, 2007
May 4 Day 9
Hi everyone,
I'm happy to say that Ernie felt a little better today. His white cell count came up slightly, so hopefully this is the start of all his counts rising, which means Dan's cells are working. He did not get a fever today and due to the transfusion yesterday he had a little more strength. They will continue with the anti-biotics for a few days. He does feel like he has sores in his esophegus, which is normal, but it makes it hard to swallow. The doctor said today that so far it is a mild case. He has slept quite a bit the last couple of days, he is very weak and everything makes him tired. As soon as he's up to it he will take over the blog again, but for now you're stuck with me. He does truly appreciate all you thoughts and prayers. He tells me all the time that he feels all your prayers and how much it helps him. He says hello to Ernie's Angels, he hasn't forgotten you, he just doesn't feel good enough to get on the computer yet.
God bless,
Ernie and Debby
I'm happy to say that Ernie felt a little better today. His white cell count came up slightly, so hopefully this is the start of all his counts rising, which means Dan's cells are working. He did not get a fever today and due to the transfusion yesterday he had a little more strength. They will continue with the anti-biotics for a few days. He does feel like he has sores in his esophegus, which is normal, but it makes it hard to swallow. The doctor said today that so far it is a mild case. He has slept quite a bit the last couple of days, he is very weak and everything makes him tired. As soon as he's up to it he will take over the blog again, but for now you're stuck with me. He does truly appreciate all you thoughts and prayers. He tells me all the time that he feels all your prayers and how much it helps him. He says hello to Ernie's Angels, he hasn't forgotten you, he just doesn't feel good enough to get on the computer yet.
God bless,
Ernie and Debby
Thursday, May 3, 2007
May 3 Day 8
Threre's not much to report again today. Ernie is still not feeling very good, even taking a shower wears him out. He has not gotten a fever yet, but each time they took his temp today it's been a little higher. This afternoon he started feeling pretty warm and achey all over, however they would not give him Tylenol until he got a fever above 100.4. He kept asking them to take his temp because he really wasn't feeling well and he wanted Tylenol and they kept telling him to wait til it gets higher. Finally at 10 p.m. it got high enough for them to give him Tylenol and start him on anti-biotics. Needless to say it was a pretty frustrating evening. Everything he's going through is normal, and it stinks but it's necessary for him to get better. He still has a rash on his neck and shoulder which he has creme for. Starting tonight he well be receiving the IV nutrition 24 hrs a day, this really was a relief to him because he doesn't have to worry about trying to eat until he feels better. Thanks again for your prayers.
God bless
Ernie and Debby
God bless
Ernie and Debby
Wednesday, May 2, 2007
May 2 Day 7
Today was not a very good day. Ernie just didn't feel well all day. He was still bothered with diarrhea, but they were finally able to give him something for it. He has started to get a rash on his neck, shoulder and lower back. The doctor gave him something for it today as well. Physical therapy came in today and even though he didn't feel like it, he still did some exercises for his back as well to just keep some muscle. When his counts are higher they have a gym on this floor he can work out in. This evening the nurse told him the culture they did on his stool was negative, so that's a good thing. So far everything that's happened to him is normal, but it doesn't make it any easier to go through. Hopefully he will feel better soon.
In His Hands,
Ernie and Debby
In His Hands,
Ernie and Debby
Tuesday, May 1, 2007
May 1 Day 6
Hi all,
I didn't feel that good today due to diahrea that I've had for the past few days. The doctor says that the graft vs. host disease can give symptoms like this so they are running tests to see if thats what it is. Today is officially the first day of my retirement, but it doesn't feel that good. I was supposed to be happy on this day, have a party and look forward to doing nothing for a while. Well, I got the doing nothing part anyway! LOL! I called the shop last night and it was good talking to the guys. It was good to get caught up on whats going on there, but it was nicer knowing that I didn't have to worry about doing anything about it! LOL! Dana got home OK last night and said the flight was good. Deb had bought Hailey some pink cowboy boots while Dana was here and Dana had told her a few days ago that she had a surprise for her from Nana. Hailey was asleep when they picked Dana up, but first thing the next morning the first words out of her mouth were, "Mommy, where's my surprise?" Kids don't forget stuff like that!!! LOL! They say that my counts could start coming up as soon as Saturday so hopefully they will. They also say that as soon as my counts come up I'll start feeling better. COOL! I hope all of you are well, God bless you all.
IN HIS HANDS,
Ernie
I didn't feel that good today due to diahrea that I've had for the past few days. The doctor says that the graft vs. host disease can give symptoms like this so they are running tests to see if thats what it is. Today is officially the first day of my retirement, but it doesn't feel that good. I was supposed to be happy on this day, have a party and look forward to doing nothing for a while. Well, I got the doing nothing part anyway! LOL! I called the shop last night and it was good talking to the guys. It was good to get caught up on whats going on there, but it was nicer knowing that I didn't have to worry about doing anything about it! LOL! Dana got home OK last night and said the flight was good. Deb had bought Hailey some pink cowboy boots while Dana was here and Dana had told her a few days ago that she had a surprise for her from Nana. Hailey was asleep when they picked Dana up, but first thing the next morning the first words out of her mouth were, "Mommy, where's my surprise?" Kids don't forget stuff like that!!! LOL! They say that my counts could start coming up as soon as Saturday so hopefully they will. They also say that as soon as my counts come up I'll start feeling better. COOL! I hope all of you are well, God bless you all.
IN HIS HANDS,
Ernie
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